Wednesday, November 19, 2014

SARAH'S JOURNEY : Positive Frustrations

*** If you are new to following Sarah's Journey I highly recommend reading the first blog to catch up and  have a better step by step understanding of why we're doing this and what it's about.  You can access the first blog by clicking this link :  http://frozenmomentportraits.blogspot.com/2014/11/sarahs-journey-beginning.html




                 "I'm in so much pain", Sarah said into the phone.   An anguishing sob trailed after a pause in between her sentence.  A sob so out of her normal character that I could almost feel her emotional pain and frustration.  That's the very first thing my best friend said when she answered the phone this morning.  What troubles me most about this is that she has several different conditions that are known to cause much physical pain yet nobody is keeping her comfortable by treating her for that pain.  Due to the Heroin Epidemic it is very hard to find a doctor who will prescribe her anything because it is feared and statistics show that patients will become addicted to the narcotic and eventually turn to the street drug, which is cheaper and stronger.   I know that my friend would never get caught up in heroin and anybody who knows Sarah would agree, but try telling a doctor who doesn't see her in such agony when it strikes and they will assume she's drug seeking.  It is my opinion that there wouldn't be a heroin epidemic if Doctors would just treat their patients with their given pain level. There is no other way to test or determine other than to trust the patient.  After all, we put our trust and lives into their hands. Also, No : This topic is not open for discussion. There are several ways to determine a drug seeker and Sarah is not one of them.  The next step is to get her referred to pain management, but as you can assume, that too is a process and a longer amount of time that goes by that she remains in pain.  Anyway, back to Sarah's frustrations instead of mine :)

             Normally, when we cry to one another it's because of emotional circumstances that can be patched up with advice from similar experiences.  Unfortunately, I cannot relate, but what I have come to realize early into Sarah's Journey is that just listening can be more beneficial than anything else. That and humor ;) It may not fix the problem, but I am a firm believer in not letting your thoughts consume your mind when you're going through a bad time.  The pressure of negative energy needs to be released in a positive way when it builds up and your mind needs to be treated and healed with positive energy and that's where my humor comes in :D  Today's blog specifically reflects around some of the ups and downs of emotions that take place once everything sets in.  I feel that Sarah's mind is going into an adaption mode to emotionally and psychologically prepare her for everything that she is going to experience within the next few months.


                         Last week I woke up before the sun was even awake to go to Sarah's Doctor's Appointment for moral support.  This was her appointment where her surgery to remove her thyroid would be discussed along with her questions and concerns.  During our drive she expressed her frustrations and that's when I knew that everything was finally hitting her. Up until that morning she was pretty positive and keeping busy to keep her mind off of things, but I think that the doctor's appointment left her with no other choice, but to face reality.  I could see an instant change in her demeanor when I hopped into the vehicle and I knew that she just needed somebody to listen to her.

         It was very important to Sarah that I mention one of her frustrations in this next blog.  She greatly appreciates all of the support that has poured in since I posted her first blog about her conditions as it has reached well over 300 views.  I see her face light up when she talks about reading all of the kind words, positive vibes, prayers, and genuinely concerned people who have shown support on my page.  I feel that positive energy is without a doubt a therapeutic medicine and while this was her choice to make her journey public she also wants others to respect her privacy.  She mentioned her frustrations over the fact that people who never gave her the time of day before began sending her friend requests on Facebook and asking family members questions.  I totally get it because being genuinely concerned versus being nosey can be a difficult card to read.  I've been there under different circumstances and while you appreciate the support and concern and it can be upsetting/frustrating when you realize that some people are involving themselves for the wrong reasons.  So please, out of respect for my best friend respect her privacy.  If there is something she wants people to know she will gladly have it shared on my blog.  It may sound silly to the reader, but I can guarantee that if you're reading this and have been through any type of crises then you will agree and relate to how she is feeling. 

          We arrived to her appointment extra early so that she could fill out paper work.  To lighten the mood I made inappropriate jokes about the personal questions on the forms, which brought a smile to her face.  When we finally got called back we continued on with our twisted sense of humor while we waited for the Doctor.. By the way, I HATE Doctors.  I put on my hard ass face and was ready to throw down at the first arrogant response that the doctor would give to any of the questions my friend has scribbled out on her folded piece of paper, but I was wrong.  In walked a very kind woman, who introduced herself to me, greeted us both with a smile, sat right next to Sarah, and talked to her like a person and not just a patient.  She gladly took Sarah's folded piece of paper, slowly read through the questions, and she answered them very thoroughly.  I was very impressed. 

       The doctor explained that generally patients only stay in the hospital for one day after having their thyroid removed, but because Sarah has a very weakened immune system due to her Crohn's she was advised to prepare for a longer stay just incase her body doesn't respond like others after this procedure.  We originally thought that she would start radiation therapy immediately after her surgery, but to Sarah's relief that won't be the case.  4-6 weeks after surgery she will be sent to another specialist who will give her 1-2 doses of a radiation pill.  I'm sure that this will leave her exhausted while she also battles her Crohn's, which she had to stop taking the medication for since it can interact negatively with the whole thyroid process. Lastly, she found that she must get some of her molars pulled before she begins radiation due to the excessive vomiting from her Crohn's Disease.  She's been using special toothe paste to protect her enamel, but unfortunately because is so sick the acids have began destroying some of her teeth :(  These things make Sarah's current situation more stressful and frustrating.  Cancer and surgery are emotionally and physically exhausting all on their own, so to adding other life threating conditions and obstacles to the mix only makes it harder. 




         Sarah received the call that the surgery to remove her thyroid is scheduled for December 18th, just 7 days before Christmas.  Another one of Sarah's  frustrations is that she can't do the simple things that she's used to doing with her 4 1/2 year old son.  It's hard for her to get into the holiday spirit and I know that she's worried about how she will be feeling during the holidays with having surgery so close to Christmas.  That's where I had a brilliant idea to bake cookies with our kids at some point within the next couple of weeks :)  Nothing wrong with celebrating Christmas early considering all of the store have Christmas Decorations out before Halloween (lol).

Monday, November 10, 2014

SARAH'S JOURNEY - The Beginning



 
                    This is my best friend of 8 years and these are her real tears. Sarah has been battling flare ups from Crohn's Disease for several months now.   Last week she was admitted to the hospital to receive treatment from a flare up and while several routine tests were being done they stumbled upon a new finding.  At 25 years old Sarah has been diagnosed with Thyroid Cancer. 
 
                    Nobody really knows what to say to a loved one when we hear the "c" word, let alone a 25 year old who still has her whole life ahead of her.  Once the word became a reality for us I decided that we MUST turn this into a positive experience.  Sarah has been kind and brave enough to allow me to document and share her journey with you all.  She has given me permission to photograph her during the most vulnerable time in her life and is allowing you all to know her thoughts as she begins a fight through surgery, radiation therapy, recovery, and continuing her battle with Crohn's Disease.  I know that I can ALWAYS ask and talk to her about anything, but I will admit that I was afraid of asking her to allow me to do this simply because it is such an invasive and personal situation. 
 
                   Over the past 6 years my Photography work has been based upon happy emotions, getting people to smile for the camera, and making others look their best. This is totally different from anything that I've ever done.  This time around we are entering a world where flaws are flawless, tears are beautiful, and raw emotion is perfection to get our point across.  Here, everything is less vibrant and more black and white, which explains why I have chosen to photograph every image in such a way.  I feel that black and white gives a much stronger presentation and visual image when emotion is involved. 
 
                 There were many times after she agreed to do this that she mentioned that she didn't want people to get the impression that she's wanting a handout, a pity party, or sympathy.  I totally get where she is coming from and out of respect I want to empathize on that for her. I am surprised that she allowed me to use the picture posted above, which I snapped as we were having a heart to heart.  She doesn't wear her emotions on her sleeve, she's rough around the edges until you really get to know her.. Basically, she's a bad @$$, like myself (LOL).  What she wants out of this is to educate readers about both cancer and Crohn's Disease and she wants to inspire others who may be suffering through the same thing.  With that being said, let's begin Sarah's Journey together.
 
 


 
 
 
 

             2 days after Sarah came home from the hospital I invited her over for lunch.  I wanted to just talk as friends and she agreed to let me make it a part of her introduction as well.  Sarah began having stomach problems shortly after  December of 2013.  After several ER visits and Doctor's appointments she was diagnosed with Crohn's Disease in May of 2014.

             I won't go into a long definition and lecture on this particular blog, but for those of you who aren't familiar with this condition it's a is a type of inflammatory bowel disease that can affect the gastrointestinal tract from mouth to anus.[2] Symptoms may include: abdominal pain, diarrhea (which may be bloody if inflammation is severe), fever and weight loss.  This also explains the skin rashes that had been coming and going several months before.  She had good days where she felt fine and out of the blue the symptoms would hit her like a ton of bricks.  This led her to feel that others thought she was exaggerating over the pain she was in.  Between December of 2013 and her hospital stay last week Sarah has went from weighing 225 lbs. to only weighing 144lbs.  Those of you who know Sarah know that she is not a small framed woman.  I have never known my best friend to weigh this little and while I think she looks great it's not a good thing and it cannot go ignored. 


                
                            When Sarah was diagnosed with Thyroid Cancer the Doctors told her that she had to stop taking her medication for her Crohn's before she could get surgery and radiation therapy otherwise it may interact negatively.  This is another step back because the medication doesn't start working right away as it is, so once her battle with cancer is over she is back to square one again.  Instead of worrying about all of that that I told her to come over and I would cook whatever she wanted.  I made a yummy tuna casserole and bought some fresh bakery bread.  I totally meant to take pictures of it, but we were both so hungry by the time that she got here, haha :)  After lunch we took my studio lights up to my bedroom because it was time to talk and I wanted her to feel comfortable, knowing that I would snap my camera at any given time to show what the beginning of her journey looks like.


              I asked Sarah how being diagnosed with cancer has changed her life so far in the beginning stages and this is what she had to say. She was originally diagnosed with a hyperactive thyroid during her hospital stay for her Crohn's flare up, so she thought that they were just running some additional tests on those results. 
              " It freaked me out just for the simple fact I got this biopsy done and when I talked to the nurses they pretty much told me that there was a 1 percent chance.. People don't get this. It's very rare cancer, so when I was in the hospital I wasn't taking it seriously because of what they said.  A doctor came in that morning and asked if I got the biopsy results back from my thyroid and I told him no.  He walked up to the computer screen and he said that he wasn't expecting this.  He told me that the test came back positive for thyroid cancer with some masses they found. I was like, 'what does this mean'? He had like 4 different doctors in the room, so I wasn't going to cry with all of those people around.  That's just not how I am. I told him that I didn't have any questions when he asked, so left and then I called my mom who was at work... I just started bawling, Sam.  My grandpa just died of Colon Cancer in August, so Cancer.. the word Cancer just scares me.  When I heard it I just thought chemo-therapy, gonna lose my hair, radiation..."




           There are so many more things that we discussed during our visit.  Some, I just don't feel are necessary to post out of respect for Sarah and some, I would love to save for future updates so that we don't fall off course with the topic of discussion for today.  She has a Doctor's appointment scheduled for Thursday morning to get the ball rolling and you bet I will be there and I will be back to continuously update everyone through Sarah's journey ;) 

            Thank you, Sarah :  For opening up to us.  I know that this is way out of the way from how you are used to coping with your feelings.  You are used to bottling things up (just like myself) and I appreciate and find it beautiful that you are doing it this way instead.  I love you so much <3